COMPLETED

Family Caregiver Online Survey (Dementia and Swallowing Difficulties)

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).

Official Title

Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias

Quick Facts

Study Start:2023-11-07
Study Completion:2025-07-14
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT06471660

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Be a caregiver for a family member (or chosen family member) with dementia
  2. * Have been caregiving for at least 2 months
  3. * Live at home with the care recipient
  4. * Not be paid for the care provided
  5. * Be over the age of 18
  6. * Live in the US
  1. * Not be a caregiver for a family member (or chosen family member) with dementia
  2. * Have been caregiving for less than 2 months
  3. * Not live at home with the care recipient
  4. * Be paid for the care provided
  5. * Be under the age of 18
  6. * Live outside in the US

Contacts and Locations

Principal Investigator

Samantha Shune
PRINCIPAL_INVESTIGATOR
The University of Oregon

Study Locations (Sites)

Remote study offered by the University of Oregon
Eugene, Oregon, 97403
United States

Collaborators and Investigators

Sponsor: University of Oregon

  • Samantha Shune, PRINCIPAL_INVESTIGATOR, The University of Oregon

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2023-11-07
Study Completion Date2025-07-14

Study Record Updates

Study Start Date2023-11-07
Study Completion Date2025-07-14

Terms related to this study

Keywords Provided by Researchers

  • caregiver
  • family caregiver
  • care partner
  • survey
  • remote
  • virtual
  • dementia
  • dysphagia

Additional Relevant MeSH Terms

  • Dementia
  • Dysphagia
  • Dementia Alzheimers
  • Dementia, Vascular
  • Dementia, Mixed
  • Dementia With Lewy Bodies
  • Dementia Frontal
  • Dementia, Mild
  • Dementia Moderate
  • Dementia Severe
  • Parkinson Disease Dementia
  • Dementia Frontotemporal