The Nuestros Días ("Our Days") Study

Description

The goal of this observational study is to understand how contextual, individual-level, and cultural factors influence the daily and long-term well-being of caregivers of relatives with memory problems or dementia. The study focuses on caregivers from the Hispanic and Latino community. The main questions it aims to answer are: * What daily factors increase (i.e., risk factors) or decrease (i.e., protective factors) the daily odds of depression and anxiety symptoms reported by caregivers? * How do these symptoms vary over time? * Do variations in depression and anxiety symptoms predict distal health outcomes? Participants will: * Complete an online baseline survey to understand their caregiving situation. * Fill out daily surveys online for three weeks about their caregiving experiences and well-being. * Complete two follow-up surveys, along with daily surveys, six and twelve months after the baseline survey. All the study information and surveys can be completed in English or Spanish based on the participant's preference.

Conditions

Caregiver Burden, Well-Being, Psychological, Stress, Psychological, Depression, Anxiety

Study Overview

Study Details

Study overview

The goal of this observational study is to understand how contextual, individual-level, and cultural factors influence the daily and long-term well-being of caregivers of relatives with memory problems or dementia. The study focuses on caregivers from the Hispanic and Latino community. The main questions it aims to answer are: * What daily factors increase (i.e., risk factors) or decrease (i.e., protective factors) the daily odds of depression and anxiety symptoms reported by caregivers? * How do these symptoms vary over time? * Do variations in depression and anxiety symptoms predict distal health outcomes? Participants will: * Complete an online baseline survey to understand their caregiving situation. * Fill out daily surveys online for three weeks about their caregiving experiences and well-being. * Complete two follow-up surveys, along with daily surveys, six and twelve months after the baseline survey. All the study information and surveys can be completed in English or Spanish based on the participant's preference.

The Mental Health Experiences of Hispanic and Latinx Dementia Caregivers

The Nuestros Días ("Our Days") Study

Condition
Caregiver Burden
Intervention / Treatment

-

Contacts and Locations

Birmingham

The University of Alabama at Birmingham, Birmingham, Alabama, United States, 35233

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. 18 years or older
  • 2. Identifies as Hispanic or Latino/a/x/e
  • 3. Provides informal care to a relative living with memory problems or dementia
  • 4. Provides care for 4 hours a day to the person living with memory problems or dementia.
  • 1. admission to a nursing home/institutional care for the person living with memory problems or dementia is planned in the next 6 months
  • 2. the potential participant (caregiver) is terminally ill
  • 3. the participant does not have reliable access to the Internet.

Ages Eligible for Study

18 Years to 100 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

University of Alabama at Birmingham,

Frank Puga, PhD, PRINCIPAL_INVESTIGATOR, Univeristy of Alabama at Birmingham

Study Record Dates

2027-03-31