The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
Congenital Central Hypoventilation Syndrome
The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD
CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)
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Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, Illinois, United States, 60611
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
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Ann & Robert H Lurie Children's Hospital of Chicago,
Debra E Weese-Mayer, MD, PRINCIPAL_INVESTIGATOR, Ann & Robert H Lurie Children's Hospital of Chicago
Maxime Patout, MD, PRINCIPAL_INVESTIGATOR, Assistance Publique - Hôpitaux de Paris (AP-HP) : Hôpital de la Pitié-Salpêtrière
Martin Samuels, MD, PRINCIPAL_INVESTIGATOR, Great Ormond Street Hospital-London (GOSH)
Christophe Delclaux, MD, PRINCIPAL_INVESTIGATOR, Assistance Publique - Hôpitaux de Paris (AP-HP) : Hôpital universitaire Robert Debré
2028-08-31