Improving PCP Advance Care Planning for People With ADRD

Description

This study will test the Dementia Advance Care Planning (AD ACP) Toolkit intervention to usual care in facilitating goals of care (GOC) discussions between People Living with Dementia (PLwD) and primary care team members over an 18-month period. The primary outcome is to assess the frequency and quality of GOC discussions with PLwD. Secondary outcomes include the identification of preferred surrogates, assessment of decisional capacity, and the completion of portable ACP orders. This randomized clinical trial aims to determine if the AD ACP Toolkit can enhance ACP practices and improve care planning outcomes for PLwD compared to the standard care approach.

Conditions

Alzheimer Disease, Dementia, Alzheimer's Disease (Incl Subtypes), Aging

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Study Overview

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Study Details

Study overview

This study will test the Dementia Advance Care Planning (AD ACP) Toolkit intervention to usual care in facilitating goals of care (GOC) discussions between People Living with Dementia (PLwD) and primary care team members over an 18-month period. The primary outcome is to assess the frequency and quality of GOC discussions with PLwD. Secondary outcomes include the identification of preferred surrogates, assessment of decisional capacity, and the completion of portable ACP orders. This randomized clinical trial aims to determine if the AD ACP Toolkit can enhance ACP practices and improve care planning outcomes for PLwD compared to the standard care approach.

Improving Primary Care Clinician's Advance Care Planning Alzheimer's Disease and Related Dementias

Improving PCP Advance Care Planning for People With ADRD

Condition
Alzheimer Disease
Intervention / Treatment

-

Contacts and Locations

Chapel Hill

University of North Carolina, Chapel Hill, Chapel Hill, North Carolina, United States, 27599

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Must be an MD/APP, employed at a primary care clinic within UNC HEALTH clinics with ≥60 PLwD encounters per year, who sees older adult patients, along with their associated nurses and social workers.
  • * Eligibility for training with AD ACP Toolkit will include the above and the provision of care at an intervention clinic.
  • * For Aim 3, only the trained intervention site primary care team members will be eligible for the implementation surveys or the interviews.
  • * Must be a PLwD age 65 years or older seen by either the intervention or control sites' primary care teams' MD/APP in the 18-month intervention window for Aim 1.
  • * PLwD will be eligible only after we confirm the presence of the AD/ADRD diagnosis.
  • * All PLwD with a ≥50% 5-year all-cause mortality risk seen by the PCTM MD/APP over the 18-month intervention period will be eligible for the healthcare utilization analyses in Aim 2.

Ages Eligible for Study

18 Years to 99 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of Pittsburgh,

Christine E. Kistler, MD, MASc, PRINCIPAL_INVESTIGATOR, University of Pittsburgh, Department of Medicine, Division of Geriatric Medicine

Laura C. Hanson, MD, MPH, PRINCIPAL_INVESTIGATOR, University of North Carolina, Chapel Hill

Study Record Dates

2027-05-31