RECRUITING

Dementia Caregivers' Link to Assistance and Resources

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The goal of this clinical trial is to learn if the Dementia Caregivers' Link to Assistance and Resources (DECLARE) program can improve support of, and engagement with, caregivers of home health patients with dementia. DECLARE includes a caregiver self-assessment that is reported in the home health patient record, and increased access to social work for cases including dementia caregivers. The main questions we aim to answer are: * Will most caregivers who are offered the chance to complete an assessment choose to do so? * Will clinicians report that the assessment information was useful? * Will the rate of social work access increase for cases with patients with dementia who have involved family caregivers? Researchers will compare DECLARE to usual care to see if taking part in the program increases caregiver self-efficacy and access to social work. Participants will: * Answer a short series of assessment questions and questions about their caregiving experiences at the beginning of the home health episode. * Receive a social work visit from a Licensed Social Worker trained in dementia care. * Answer a series of follow-up questions about their caregiving experiences at the end of the home health episode.

Official Title

Dementia Caregivers' Link to Assistance and Resources: Supporting Caregivers of Home Health Patients With Dementia

Quick Facts

Study Start:2025-05-05
Study Completion:2026-06-30
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT06860035

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Individual must be listed as the caregiver of record for a patient receiving home health care from the partner home health agency and have a phone number on file; the patient must meet the inclusion criteria listed below.
  2. * Home health patient (care recipient) must have a documented dementia diagnosis on the home health assessment, be 65 years or older, and have Traditional Medicare or Medicare Advantage as their primary payer for the home health episode.
  1. * Caregivers are excluded if they are unable to communicate in English.

Contacts and Locations

Study Contact

Julia Burgdorf, PhD
CONTACT
(585) 406-7926
julia.burgdorf@vnshealth.org
Margaret McDonald, MSW
CONTACT
(646) 771-5336
margaret.mcdonald@vnshealth.org

Principal Investigator

Julia G Burgdorf, PhD
PRINCIPAL_INVESTIGATOR
Center for Home Care Policy & Research, VNS Health

Study Locations (Sites)

VNS Health Home Care
New York, New York, 10017
United States

Collaborators and Investigators

Sponsor: Visiting Nurse Service of New York

  • Julia G Burgdorf, PhD, PRINCIPAL_INVESTIGATOR, Center for Home Care Policy & Research, VNS Health

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-05-05
Study Completion Date2026-06-30

Study Record Updates

Study Start Date2025-05-05
Study Completion Date2026-06-30

Terms related to this study

Additional Relevant MeSH Terms

  • Alzheimer Disease or Associated Disorder
  • Dementia