RECRUITING

Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This study expands and validates the pilot study NCT06381284. It is a fully remote, site-less, prospective, observational study enrolling adults in the United States (excluding U.S. territories) with undiagnosed neuromuscular symptoms. The primary objective is to determine the validity of a self-assessment tool in encouraging undiagnosed participants, recruited through a social media campaign, to seek medical evaluation for suspected myasthenia gravis (MG).

Official Title

Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

Quick Facts

Study Start:2025-02-26
Study Completion:2025-12-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT06866483

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Reside within the 50 states of the United States at the time of enrollment
  2. * Age 19 or older if reside in Nebraska or Alabama, Age 21 or older if reside in Mississippi, Age 18 years or older if reside in any other state
  3. * Active email account
  4. * Fluency in English (spoken / written), as demonstrated by the ability to read and sign the Informed Consent Form
  1. * Live in an overseas territory of the United States
  2. * Inability or unwillingness to provide written informed consent
  3. * Diagnosed myasthenia gravis, including sero-negative MG\*
  4. * Diagnosed multiple sclerosis
  5. * Have speech impairment, eye/arm/leg weakness due to diagnosed brain cancer, or stroke

Contacts and Locations

Study Contact

Ananda Vishnu Pandurangadu, MD
CONTACT
1-847-448-1001
support@unearthrootcause.com

Study Locations (Sites)

ZS Associates
Evanston, Illinois, 60201
United States

Collaborators and Investigators

Sponsor: ZS Associates

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-02-26
Study Completion Date2025-12-31

Study Record Updates

Study Start Date2025-02-26
Study Completion Date2025-12-31

Terms related to this study

Keywords Provided by Researchers

  • social media
  • myasthenia gravis

Additional Relevant MeSH Terms

  • Myasthenia Gravis
  • Neuromuscular Disease
  • Neuromuscular Manifestations