Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

Description

This study expands and validates the pilot study NCT06381284. It is a fully remote, site-less, prospective, observational study enrolling adults in the United States (excluding U.S. territories) with undiagnosed neuromuscular symptoms. The primary objective is to determine the validity of a self-assessment tool in encouraging undiagnosed participants, recruited through a social media campaign, to seek medical evaluation for suspected myasthenia gravis (MG).

Conditions

Myasthenia Gravis, Neuromuscular Disease, Neuromuscular Manifestations

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Study Overview

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Study Details

Study overview

This study expands and validates the pilot study NCT06381284. It is a fully remote, site-less, prospective, observational study enrolling adults in the United States (excluding U.S. territories) with undiagnosed neuromuscular symptoms. The primary objective is to determine the validity of a self-assessment tool in encouraging undiagnosed participants, recruited through a social media campaign, to seek medical evaluation for suspected myasthenia gravis (MG).

Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment

Condition
Myasthenia Gravis
Intervention / Treatment

-

Contacts and Locations

Evanston

ZS Associates, Evanston, Illinois, United States, 60201

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Reside within the 50 states of the United States at the time of enrollment
  • * Age 19 or older if reside in Nebraska or Alabama, Age 21 or older if reside in Mississippi, Age 18 years or older if reside in any other state
  • * Active email account
  • * Fluency in English (spoken / written), as demonstrated by the ability to read and sign the Informed Consent Form
  • * Live in an overseas territory of the United States
  • * Inability or unwillingness to provide written informed consent
  • * Diagnosed myasthenia gravis, including sero-negative MG\*
  • * Diagnosed multiple sclerosis
  • * Have speech impairment, eye/arm/leg weakness due to diagnosed brain cancer, or stroke

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

ZS Associates,

Study Record Dates

2025-12-31