ALS Research Collaborative

Description

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.

Conditions

Amyotrophic Lateral Sclerosis, ALS (Amyotrophic Lateral Sclerosis), ALS with Frontotemporal Dementia (ALS/FTD), Motor Neuron Disease, Motor Neuron Disease, Amyotrophic Lateral Sclerosis

Study Overview

Study Details

Study overview

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.

ALS Translational Research Program

ALS Research Collaborative

Condition
Amyotrophic Lateral Sclerosis
Intervention / Treatment

-

Contacts and Locations

Watertown

ALS Therapy Development Institute, Watertown, Massachusetts, United States, 02472

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * 18 years of age or older
  • * Can communicate in written English
  • * Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation
  • * Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

ALS Therapy Development Institute,

Fernando G Vieira, M.D., PRINCIPAL_INVESTIGATOR, ALS Therapy Development Institute

Study Record Dates

2035-01-31