COMPLETED

Using Visual Arrays to Support Understanding of Genetic Risk

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The goal of this study is to understand how people understand risk from genetic testing. The investigators want to understand what visual aid best helps people accurately assess risk. The investigators also want to understand how people relate risk to their health. The main questions the study aims to answer are: 1. Which visual aid most accurately show genetic risk? 2. How do people perceive risk related to genetic test results? 3. What factors are associated with people discussing their results with family? Participants will: 1. receive of of two visual aids showing risk 2. state their estimation of risk 3. answer questions about how they feel about risk and sharing information with family

Official Title

Examining Genetic Literacy and Numeracy in the General Population

Quick Facts

Study Start:2025-07-28
Study Completion:2025-08-18
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT06994832

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * ability to read and understand English
  2. * opt-in consent
  1. * incorrect responses to validation questions

Contacts and Locations

Principal Investigator

Andrew A Dwyer, PhD
PRINCIPAL_INVESTIGATOR
Boston College

Study Locations (Sites)

Boston College
Boston, Massachusetts, 02467
United States

Collaborators and Investigators

Sponsor: Stephanie B. Seminara, MD

  • Andrew A Dwyer, PhD, PRINCIPAL_INVESTIGATOR, Boston College

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-07-28
Study Completion Date2025-08-18

Study Record Updates

Study Start Date2025-07-28
Study Completion Date2025-08-18

Terms related to this study

Keywords Provided by Researchers

  • Lynch syndrome
  • colorectal cancer
  • colon cancer
  • genetic testing

Additional Relevant MeSH Terms

  • Decision Aid