RECRUITING

Prospective Research Rare Kidney Stones (ProRKS)

Description

The purpose of this study is to determine the natural history of the hereditary forms of nephrolithiasis and chronic kidney disease (CKD), primary hyperoxaluria (PH), cystinuria, Dent disease and adenine phosphoribosyltransferase deficiency (APRTd) and acquired enteric hyperoxaluria (EH). The investigator will measure blood and urinary markers of inflammation and determine relationship to the disease course. Cross-comparisons among the disorders will allow us to better evaluate mechanisms of renal dysfunction in these disorders.

Study Overview

Study Details

Study overview

The purpose of this study is to determine the natural history of the hereditary forms of nephrolithiasis and chronic kidney disease (CKD), primary hyperoxaluria (PH), cystinuria, Dent disease and adenine phosphoribosyltransferase deficiency (APRTd) and acquired enteric hyperoxaluria (EH). The investigator will measure blood and urinary markers of inflammation and determine relationship to the disease course. Cross-comparisons among the disorders will allow us to better evaluate mechanisms of renal dysfunction in these disorders.

Prospective Research Rare Kidney Stones (ProRKS)

Prospective Research Rare Kidney Stones (ProRKS)

Condition
Hyperoxaluria
Intervention / Treatment

-

Contacts and Locations

Birmingham

University of Alabama @ Birmingham, Birmingham, Alabama, United States, 35294

Jacksonville

Mayo Clinic Jacksonville, Jacksonville, Florida, United States, 32224

Chicago

Children's Memorial Hospital, Chicago, Illinois, United States, 60614

Boston

Children's Hospital, Harvard Medical School, Boston, Massachusetts, United States, 02115

Rochester

Mayo Clinic Hyperoxaluria Center, Rochester, Minnesota, United States, 55905

New York

New York University, New York, New York, United States, 10010

Cincinnati

Cincinnati Children's Hosptial Medical Center, Cincinnati, Ohio, United States, 45229

Philadelphia

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States, 19104

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. Diagnosis of primary hyperoxaluria
  • 2. Diagnosis of enteric hyperoxaluria
  • 3. Diagnosis of Dent Disease
  • 4. Diagnosis of Cystinuria
  • 5. Diagnosis of adenine phosphoribosyltransferase deficiency (APRTd)
  • 6. Diagnosis of Lowe Syndrome
  • 7. Diagnosis of Dent Disease Carrier
  • 1. Prior renal failure
  • 2. History of liver and/or kidney transplant.

Ages Eligible for Study

to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Mayo Clinic,

John Lieske, MD, PRINCIPAL_INVESTIGATOR, Mayo Clinic

Study Record Dates

2026-07