HEalth Advocate for Liver Transplant - Pilot

Description

The Health Advocate for Liver Transplant (HEAL-Tx) Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for pediatric liver transplant patients and measure acceptability and feasibility according to RE-AIM.

Conditions

Liver Transplant; Complications, Pediatric ALL

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Study Overview

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Study Details

Study overview

The Health Advocate for Liver Transplant (HEAL-Tx) Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for pediatric liver transplant patients and measure acceptability and feasibility according to RE-AIM.

HEalth Advocate for Liver Transplant - Pilot

HEalth Advocate for Liver Transplant - Pilot

Condition
Liver Transplant; Complications
Intervention / Treatment

-

Contacts and Locations

San Francisco

University of California San Francisco, San Francisco, California, United States, 94158

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. Patients under 18 years if age that have undergone liver transplantation.
  • 2. Subject and/or parent/legal guardian can provide written informed consent and willing to comply with study procedures.
  • 3. Subject and/or parent/ legal guardian is willing to be contacted in the future by study staff.
  • 4. Patient and/or caregiver felt to be a good fit for this pilot by transplant team.
  • * Caregiver unwilling or unable to complete the survey.
  • * Child is a ward of the state (e.g. foster care) since present circumstances may not be reflective of child's past or future circumstances.
  • * Non-English, non-Spanish speakers.
  • * Non-US residents.
  • * Greater than 18 years of age at the time of enrollment.

Ages Eligible for Study

to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of California, San Francisco,

Sharad Wadhwani, MD, MPH, PRINCIPAL_INVESTIGATOR, University of California, San Francisco

Study Record Dates

2025-06-30